Dr Edward Dove delivers keynote at International Workshop on Genome Privacy and Security, Boston
Tue 29 October 2019
On Monday 21 October, Dr Edward Dove gave a keynote speech at the 6th International Workshop on Genome Privacy and Security (GenoPri'19) in Boston, USA. In his speech, titled 'Data Sharing, Stewardship, and the Push for an International Data Protection Regulatory Framework', Dr Dove noted that there are serious impediments to realising smooth, responsibly governed genomic and health-related data flows across institutions, labs, clinics, and borders.
The speech focused on the disharmonisation of data protection laws around the globe and, connected to this, a misalignment between data protection laws and research ethics norms. Dr Dove suggested that the emerging concepts of data and regulatory stewardship can be applied to health research governance to help us overcome these challenges in legal disharmonisation and confusion for researchers in navigating regulatory complexity.