GenEthics Forum 2025

Who Can Attend 
GenEthics Forum meetings provide opportunities for discussion of practical ethical issues and dilemmas encountered by professionals working in clinical genetics in their work with patients and families. Meetings of the Forum are multi-disciplinary. Researchers in all fields with an interest in genetic medicine, including those working in medical ethics, law, and the social sciences, are welcome to attend, to contribute, and to learn from the experiences and questions raised by healthcare professionals.  

About the Event 
The GenEthics Forum is for health professionals - and other interested parties - to discuss and explore difficult ethical and/or legal issues encountered in genetic/genomic medicine. The GenEthics GeCIP (genomics England clinical interpretation partnership) focusses on such issues encountered in the 100,000 genomes project

The GenEthics Forum takes place three times a year. The meetings are relatively informal in order to facilitate discussion of cases presented from different centres. The meetings usually include a plenary talk on a particular theme of interest, such as for example, a talk by a medical lawyer on the law on confidentiality in genetics. The meetings are multi-disciplinary and aim to have a medical ethicist and an academic medical lawyer present at each meeting. 

The GenEthics Forum is for health professionals - and other interested parties - to discuss and explore difficult ethical and/or legal issues encountered in genetic/genomic medicine.

The GenEthics Forum aims to:
•    help health professionals to identify ethical issues arising in the day to day practice of their work with patients and families
•    help geneticists, genetic counsellors and nurses to develop their skills in identifying and resolving ethical issues
•    provide a forum for the presentation and discussion of cases from units around the country
•    encourage the sharing of good practice
•    help units to develop ways of ensuring that ethical considerations inform the day to day practice of their units
•    contribute to the improvement of ethical decision-making in practice
 
Plenary Session
Hadewych Honné will be discussing ’The Patient Voice and Politics in Access to Orphan Drugs’.

Registration 
There will be a charge of £30 for attendance at our meeting to cover associated costs.

If you would like to attend the meeting, please contact genethics.forum@gmail.com to reserve your space. 

This event is in person only.

Image credit:  Freepik