School of Law School of Law
Academic Staff    
Miss Nayha Sethi
Research Fellow, Deputy Director Mason Institute
LLB, LLM

School of Law
University of Edinburgh
Old College
South Bridge
Edinburgh EH8 9YL
UK

Tel: 0131 651 4267
Fax: 0131 650 2005
Email: nayha.sethi@ed.ac.uk
Biographical Details

Nayha graduated with her LLB (Common and Civil Law with French) from Queens University Belfast in 2008, she then obtained her LLM in Law from the University of Edinburgh in 2009. Since 2009, she has been working as a Research Fellow at the AHRC SCRIPT Centre for Intellectual Propery and Technology Law). She also commenced her doctoral studies during this time. Nayha's interests lie primarily within bioethics and in particular, the interface between medicine, ethics and the law. She is particulary interested in interdisciplinary collaborations.

Nayha is currently working as a Research Fellow on the information governance stream of SHIP (Scottish Health Informatics Programme) under the direction of Professor Graeme Laurie. SHIP is a Scotland-wide project funded by the Wellcome Trust. It aims to better facilitate secondary uses of health data for research, thus her research to date has focused on related ethical legal and social issues, particularly issues of consent, privacy, data protection, data linkage and on a broader level, information governance. Her doctoral work is supervised by Prof Graeme Laurie and Mr. Gerard Porter, and is based on medical decision-making, her research aims to explore the role of principles at different levels of decision-making within bioethics.

Nayha is also currently Managing-Editor of SCRIPTed:A Journal of Law, Technology and Society. Nayha is also a member of the European Association of Health Law.

Nayha was appointed Deputy Director of the Mason Institute for Life Sciences, Medicine and the Law in 2012.
Selected Publications
Notes and Reviews
Nayha Sethi 'Preserving Life and Facilitating Death: What Role for Government After Haas v Switzerland?' (2011) European Journal of Health Law 355-364
Working and Occasional Papers
Nayha Sethi, Graeme Laurie 'Information Governance of Use of Health-Related Data in Medical Research in Scotland: Current Practices and Future Scenarios', School of Law Working Paper Series, 2011/26 (SSRN, 2011)
View this ArticleView this Article

Abstract
This paper has been prepared as part of the governance work stream of the
Scottish Health Informatics Programme (SHIP). It is intended as a platform for discussion and further elaboration with colleagues and those interested in issues surrounding the governance of secondary uses of health data for research. The main aims of the paper are two-fold. First, to offer an ethical, legal and social account of the current regulatory framework governing the use of person identifiable information (PII) for medical research in Scotland. It does so by both mapping out the legislation and key actors involved in governance, as well as illustrating how the framework is perceived to work in practice.
A second aim of the report is to suggest a template to be used in the assessment of good governance. This template can be used both to evaluate current practices and to test any proposals for change in approaches to governance in Scotland and elsewhere with respect to uses of patient data for research purposes. It is anticipated that this template will be developed and refined with input from SHIP colleagues (particularly those at
Information and Statistics Division (ISD) of NHS Scotland and those involved in the SHIP
Systematic Review) as well as other stakeholders. This is the first in a series of papers in the governance stream of the SHIP programme, funded by the Wellcome Trust. Future papers will address the design challenges of a new system of information governance for health-related medical research in Scotland.

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